To support the work of the Precision Medicine Initiative, the National Institutes of Health (NIH) announced the formation of a Working Group. Part of the Advisory Committee to the Director, this Working Group will help develop the million-person cohort that is an important part of the Initiative.
The membership is two-fold. There will be non-voting representatives from a variety of federal agencies and voting members with expertise in large clinical trials and/or precision medicine.
The working group will help determine how to design studies based on a cohort of such size, and the unique challenges such a group presents. It will also coordinate efforts to gather public input from patient and stakeholder groups through workshops on various topics related to large-scale medical studies. Opportunities for the public to comment should be publicized on the Precision Medicine Initiative website.